Treating Neurofibromatosis with Cannabis

Treating Neurofibromatosis with Cannabis.

Neurofibromatosis Treatment With Medical Cannabis

A genetic disorder, neurofibromatosis can develop anywhere in the nervous system causing tumors in the spinal cord, nerves and brain. The tumors themselves are usually non-cancerous but sometimes they do become cancerous. Each of the three types of neurofibromatosis is progressively less common but progressively more painful and with increased cancer risk. Illinois marijuana laws may make cannabis an option for treatment for some people suffering with this disease.

Neurofibromatosis 1 (NF1)

This is usually the earliest diagnosed neurofibromatosis, coming on in early childhood and recognized by several cafe au lait flat spots on the body, freckling in the groin and armpit area that shows around age 4, small benign tumors under the skin called neurofibromas, tiny bumps on the iris of the eye that do not effect vision, bone deformities, learning disabilities, short stature, and larger than average head size. Although diagnosed young, it will continue to affect a person for life.

Neurofibromatosis 2 (NF2)

NF2 is characterized by tumors on the nerves that carry sound and balance information resulting in gradual hearing loss, ringing in the ears and loss of balance. This can worsen and tumors may cause nerve damage like numbness or weakness in the arms and legs and facial drop. Pain and balance issues are common. In children it can include abnormal growths on the retina that do affect vision, and in adults it may cause early development of cataracts.


The rarest form of neurofibromatosis is marked by significant chronic pain because of tumors on cranial, spinal and peripheral nerves. This is also usually diagnosed later, in the 20s or 30s.

Treatment With Illinois Cannabis

Although neurofibromatosis 1 begins in early childhood it continues to affect people into adulthood but there are no specific treatments for it. Further research is needed in regards to NF1. Medical marijuana may provide some comfort especially while dealing with the learning disabilities. Edibles may be an option for children.

Neurofibromatosis 2 is diagnosed typically in the late teens and often follows a diagnosis of NF1 in earlier childhood. Medical cannabis in any form may be an option for addressing certain symptoms. Many cancer patients have stated that marijuana has helped either to keep tumors from growing or to even shrink them. Whether tumors are benign or cancerous, cannabis may be able to affect the size, and that could keep the tumors from pressing on nerves and causing the other symptoms. Medical marijuana is also well known to treat pain and has been proven more effective than prescription medications for nerve-specific pain.

Because Schwannomatosis causes significant and chronic pain, it is the best candidate for medical marijuana use in any form as a treatment. Besides controlling the development of tumors, many people with nerve pain say that cannabis is the only thing that has worked for them. The pain caused by Schwannomatosis can be quite severe so having access to an Illinois dispensary is a great opportunity to find relief.

For more information visit the Neurofibromatosis Network.